An International Community

Membership & Local Support

Get Involved

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.  Please see our Constitution for further details.

 

All fully subscribed country members with their own constituted PWS Association pay an annual subscription fee based on the number of families in their membership.  The subscription year runs from 1 January to 31 December.

 

How do you become a member of IPWSO?  Click here

 

Membership fees

Country Associations with less than 50 members   EUR 50

Country Associations with  50-99 members            EUR 100

Country Associations with 100-299 members         EUR 200

Country Associations with 300-499 members         EUR 500

Country Associations with 500+ members              EUR 1,000

Fees can be paid via iDonate, or to our bank account. 

Please contact us for bank details.

Local Support

Each country's registered PWS Association appoints Parent and Professional Delegates to be their representatives.  When applicable, a Caregiver Delegate  is also appointed. 

If you wish to contact the local representative of any member list below; please contact us

Member Countries

Member countries are subscribed members with voting rights.  All delegates can be contacted for help. Click the links to visit the local member website or social pages. For additional contact, help or support please let us know here

Associate Member Countries

Associate Member Countries have professional and/or parent contacts who are working with people with PWS.  All delegates can be contacted for help. If you wish to speak with a local representative please contact us here

Albania

Algeria

Armenia

Australia 

Bahrain

Bangladesh

Belarus

Bolivia

Botswana

Boznia Herzegovina

Bulgaria

China

Costa Rica

Croatia

Cuba

Dominican Republic

Ecuador

Egypt

El Salvador

Fundación Prader Willi (FSPW)

Georgia

Guatemala

Honduras

Hong Kong​​​​​

Panama

Paraguay

Peru

Philippines

Portugal

Puerto Rico

Qatar

Russia Federation

Rwanda

Saudi Arabia

Singapore

Slovakia

Slovenia

South Korea

SPINE Foundation (Argentina)

Tunisia

Turkey

Uganda

Ukraine

Uruguay

Uzbekistan

Venezuela

Vietnam

Yemen

Iceland

Indonesia

Iran

Jamaica

Jordan

Kazakhistan

Kenya

Kosovo

Kuwait

Latvia

Lebanon

Libya

Lithuania

Macedonia

Malta

Moldavia

Morocco

Nepal

Nicaragua

Nigeria

Oman, Sultanate of

Ontario Prader-Willi Syndrome Ass.

Palestine Territory

Pakistan

Further information:

> Become a member

> What is PWS

> Treatment

> Clinical Features

> Guidance for families

> Medical Care & Research

> Residential Caregivers

Not found what you're looking for?
 

Get in touch and let us know how we can help you with any enquiry about Prader-Willi syndrome and how our organisation works.

Address:

IPWSO,

Douglas House,

18b Trumpington Road,

Cambridge 

CB2 8AH, UK

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Registered as a charity in England & Wales, charity no. 1182873